Journal of
AIDS and HIV Research

  • Abbreviation: J. AIDS HIV Res.
  • Language: English
  • ISSN: 2141-2359
  • DOI: 10.5897/JAHR
  • Start Year: 2009
  • Published Articles: 288

Full Length Research Paper

Patients’ perceptions of the usability, utility and impact of a same-day self-administered routine electronic patient-reported outcomes (PRO) assessment in HIV care in two North American clinics

Rob Fredericksen
  • Rob Fredericksen
  • Department of Medicine, University of Washington, United States.
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Duncan Short
  • Duncan Short
  • ViiV Healthcare, 980 Great West Road Brentford Middlesex TW8 9GS, United Kingdom.
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Emma Fitzsimmons
  • Emma Fitzsimmons
  • Department of Medicine, University of Washington, United States.
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Divya Korlipara
  • Divya Korlipara
  • Midway Specialty Care, 356 E Midway Rd, Fort Pierce, FL 34982, United States.
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Shivali Suri
  • Shivali Suri
  • St. Michael's Hospital, 30 Bond St., Toronto, ON M5B 1W8, Canada.
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Brenda Jacobs
  • Brenda Jacobs
  • Midway Specialty Care, 356 E Midway Rd, Fort Pierce, FL 34982, United States.
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Jean Bacon
  • Jean Bacon
  • Ontario HIV Treatment Network, 1300 Yonge St, Suite 600 Toronto, Canada.
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Abigail Kroch
  • Abigail Kroch
  • Ontario HIV Treatment Network, 1300 Yonge St, Suite 600 Toronto, Canada.
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Alexandra Musten
  • Alexandra Musten
  • Ontario HIV Treatment Network, 1300 Yonge St, Suite 600 Toronto, Canada.
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Vince Hodge
  • Vince Hodge
  • Midway Specialty Care, 356 E Midway Rd, Fort Pierce, FL 34982, United States.
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Moti Ramgopal
  • Moti Ramgopal
  • Midway Specialty Care, 356 E Midway Rd, Fort Pierce, FL 34982, United States.
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Darrell Tan
  • Darrell Tan
  • St. Michael's Hospital, 30 Bond St., Toronto, ON M5B 1W8, Canada.
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Jeff Berry
  • Jeff Berry
  • ViiV Healthcare, 980 Great West Road Brentford Middlesex TW8 9GS, United Kingdom.
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Deborah Yoong
  • Deborah Yoong
  • St. Michael's Hospital, 30 Bond St., Toronto, ON M5B 1W8, Canada.
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Mark Naccarato
  • Mark Naccarato
  • St. Michael's Hospital, 30 Bond St., Toronto, ON M5B 1W8, Canada.
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Kevin Gough
  • Kevin Gough
  • St. Michael's Hospital, 30 Bond St., Toronto, ON M5B 1W8, Canada.
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Justin McReynolds
  • Justin McReynolds
  • University of Washington, Department of Biomedical Informatics and Medical Education, United States.
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William Lober
  • William Lober
  • University of Washington, Department of Biomedical Informatics and Medical Education, United States.
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Heidi Crane
  • Heidi Crane
  • Department of Medicine, University of Washington, United States.
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  •  Received: 01 February 2022
  •  Accepted: 11 April 2022
  •  Published: 31 May 2022

Abstract

We assessed patients’ perceptions of the utility and impact of a same-day self-administered tablet-based patient-reported outcomes (PRO) assessment integrated into routine HIV care in two North American clinics. People with HIV (PWH) self-administered a PRO assessment inclusive of psychosocial and behavioral topics prior to their routine care visit. Providers were given succinct summary results before seeing the patient. We conducted semi-structured 1:1 interviews after appointments assessing utility and perceived impact of PROs. We coded themes using qualitative software. PWH (n=30; mean age 48) reported PROs facilitated honest responses, improved recall, enriched communication, expanded comprehensiveness of care, and promoted self-evaluation. Several PWH reported feeling more ‘cared about’ when asked about mental health and quality of life-related needs. PWH found PROs administered before the routine care appointments were useful for prioritizing discussion topics with their providers, initiating discussion of sensitive issues, and improving comprehensiveness of/satisfaction with care.

Key words: Patient-reported outcomes, HIV care.